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Aimed Alliance’s Know Your Rights Campaign is featured on Derma Care Access Network. View here.
The Derma Care Access Network is a 501(c)4 non-profit advocacy organization of diverse stakeholders, including patients, patient advocates, physicians, and scientists. DCAN is a project of the Alliance for Patient Access.
Your organization is invited to attend Preserving the Right to Quality Care: Spotlight on Migraine Disorders, a dinnertime advocacy workshop that focuses on changing health care policies that currently keep millions of patients from getting timely and effective care for migraine disorders, and a better overall health with the help of a good diet and an Online Fitness Training.
Hosted by the Aimed Alliance, the workshop offers solutions for managing high copays, coverage
denials, and insurance policies that delay treatment, force individuals to try less effective therapies, and keep patients from seeing the health care providers they trust.
Dinner to be included.
Because these issues impact patients, caregivers, health care practitioners, employers, and human
resources professionals, Aimed Alliance welcomes interested stakeholders to attend the workshop at
Stacey Worthy, JD
As Counsel to Aimed Alliance, Stacey Worthy provides legal insights that drive the organization’s education, advocacy, and policy initiatives. Based on her extensive research and analysis of federal and state laws, regulations and legislative affecting access to quality health care, Stacey authors scholarly articles for publication, drafts model legislation, develops policy positions, and assists with coalition-building efforts of allied organizations focused on advancing common goals. She is also a featured speaker at national conferences and contributes commentary that addresses important issues impacting patients with serious chronic diseases and rare conditions. Along with her work for Aimed Alliance, Stacey is a partner at DCBA Law & Policy where she counsels members of the health care industry, small businesses, and not-for-profits. She earned her Juris Doctorate degree from the George Mason School of Law and graduated magna cum laude from Boston’s Suffolk University.
Shruti Kulkarni, JD
As a specialist in legal, legislative, and regulatory matters affecting health care delivery, Shruti Kulkarni provides legal insights and recommends strategies to drive policy change. Her work includes analyzing existing and proposed legislation, regulation, and policies; drafting proposed legislation and regulatory language; developing white papers and policy positions; and educating state and federal legislators and regulators about the patient impact of specific policies or proposed actions. Shruti is also an associate at DCBA Law & Policy where she counsels biopharmaceutical and medical device companies and not-for-profits. Along with earning her Juris Doctorate degree from the George Mason School of Law, she interned at the U.S. Food and Drug Administration’s Office of Policy in the Office of the Commissioner where she worked on First Amendment-related matters and the Food Safety Modernization Act’s Proposed Rule for Produce Safety.
Katie M. Golden
Contributing Writer and Community Moderator, Migraine.com
After 15 years in community banking, Katie Golden joined Migraine.com as a writer and community moderator in 2013 when chronic migraine left her unable to continue in her job. Now, her mission is “living a fulfilled life while managing chronic migraines,” which she accomplishes by sharing her experiences through her blog, Golden Graine, and as a patient advocate. Among her many roles, she is the Migraine Advocacy Liaison for the U.S. Pain Foundation, a member of the Coalition for Headache and Migraine Patients (CHAMP) and the Headache and Migraine Policy Forum, and was the recipient of the Association of Migraine Disorders’ 2017 Impact Award. A native of West Virginia, she lives in Santa Monica, California.
Lindsay Videnieks, JD
The Headache and Migraine Policy Forum
Lindsay Videnieks serves as director of The Headache and Migraine Policy Forum (HMPF), a network of 17 non-profit organizations that encourages the advancement of headache science and innovation and addresses the need for expanded access to appropriate prevention and treatment options for all patients as well as accelerated approval and coverage of new and more effective therapies. A strong advocate for chronic migraine suffers, Lindsay brings more than a decade of experience in health care policy to the cause of reducing the burden of migraine as an undertreated and debilitating medical condition. Previously, she worked in the office of Congressman John E. Baldacci (D-ME) and on his re-election to the U.S. House of Representatives. She also worked at one of the largest lobbying firms in Washington, Cassidy & Associates, on a range of health care issues, and served as a state and local affairs specialist at the largest privately held public affairs firm in California, Cerrell Associates in Los Angeles, on matters before local governmental bodies and regulatory agencies, including the City Council. She graduated from the University of Maine at Orono and received her Juris Doctor degree from the Catholic University Columbus School of Law.
Maureen McCluskey, RN, BSN, MA
Health and Wellness Disease Education Specialist
As a health and wellness disease education specialist, Maureen McCluskey is responsible for the planning, implementation, organization, delivery and evaluation of outcomes-based corporate wellbeing and disease management programs that have supported the culture of health in large companies like JP Morgan Chase and American Express. This includes designing workplace migraine education programs to provide employees with information to enhance migraine self-care, better manage their disease, and decrease the severity and frequency of their migraines. Maureen has also co-authored and published a number of papers on condition management and the workplace in the Journal of Occupational and Environmental Medicine and the Journal of Population Health Management, was featured in Corporate Wellness Magazine for integrating innovative strategies into disease education, and often speaks at national conferences. She holds a Bachelor of Science Degree in Nursing from Saint Xavier University and a Master’s in Health Communication from Governor State University.
|6:30 PM||Registration and Dinner|
|6:45 PM||Welcome, Objectives, and Introductions
Stacey Worthy, JD, Counsel, Aimed Alliance
|6:55 PM||Federal Update: The Politics of Coverage
Shruti Kulkarni, JD, Advisor, Aimed Alliance
|7:10 PM||Panel: Patient Realities
Lindsay Videnieks, JD, Director, Headache and Migraine Policy Forum
Katie Golden, Writer for Migraine.com and Founder of GoldenGraine.com
Interviewed by Stacey Worthy
|7:25 PM||Consumer Protection Overview: Discriminatory Policies that Limit Access to Care
|7:45 PM||Engaging Employers to Implement Disease Management Programs
Maureen McCluskey, RN, BSN, MA, Health & Wellness Disease Education Specialist
|8:00 PM||Roundtable Discussion: What Can Be Done Now: Tools, Strategies and Resources
Moderated by Stacey Worthy and Shruti Kulkarni
We’ve rounded up some of your Dear Stacey questions to find out what cancer patients can expect from their insurance plan, how to navigate and understand coverage, rights as an employee and more. Stacey Worthy, Counsel to Aimed Alliance of healthcare law and policy, provides guidance on coverage and potential restrictions, and shares useful information on diagnostics and genetic testing. View on Patient Power.
Aimed Alliance invites organizations to attend Preserving the Right to Quality Care: Spotlight on Autoimmune Conditions, a lunchtime advocacy workshop that focuses on changing health care policies that currently keep millions of patients from getting timely and effective care for autoimmune conditions, such as rheumatoid arthritis, psoriasis, lupus, Crohn’s disease, and type 1 diabetes.
Hosted by the Aimed Alliance, the workshop offers solutions on managing high copays, coverage denials, and insurance policies that delay treatment, force individuals to try less effective therapies, and keep patients from seeing the health care providers they trust.
The workshop is free and includes complimentary lunch.
|8:00 AM||Registration and Continental Breakfast|
|8:30 AM||Workshop Welcome, Objectives, and Introductions
Nellie Wild, Aimed Alliance Executive Director
|9:00 AM||Federal Update: The Politics of Coverage
Stacey Worthy, JD, Counsel to Aimed Alliance
|9:30 AM||Consumer Protection Overview Part I: Discriminatory Policies that Limit Access to Treatment
|10:15 AM||Conversation: The Patient Realities
Kate Houghton, President & CEO, Critical Mass: The Young Adult Cancer Alliance
Interviewed by Nellie Wild</td
|10:45 AM||Consumer Protection Overview Part II: Discriminatory Policies that Limit Access to Services
|11:05 AM||Panel: Making an Impact by Inserting the Patient Voice
Moderated by Nellie Wild
Rose Gerber, Director of Patient Advocacy & Education, Community Oncology Alliance
Terry Wilcox, Co-Founder and Executive Director, Patients Rising
Stacey Worthy, Counsel, Aimed Alliance
|12:00 PM||Roundtable Lunch
What Can Be Done Now: Tools, Strategies, and Resources
Moderated by Nellie Wild